Opinions

Essay
Lyndsay Hoy and Marina K. Holz
Feb. 4, 2026
As women’s health gains long-overdue attention, rare diseases like lymphangioleiomyomatosis remain sidelined. A physician living with LAM and a basic scientist explain why patient-driven, trial-ready research is essential to turning momentum into meaningful progress.
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An assistant professor discusses AI's evolution from a buzzword to a trusted research partner. It helps streamline reviews, troubleshoot code, save time and spark ideas, but its success relies on combining AI with expertise and critical thinking.

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Amid drastic proposed cuts to biomedical research, rare disease families like Hailey Adkisson’s fight for survival and hope. Without funding, science can’t “catch up” to help the patients who need it most.

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